Tuesday, September 9, 2014

Strangely Calm

I am strangely calm tonight.......tomorrow will be my first treatment with a different brand.  Usually, I am full of dread the night before.  Can you blame me?  After two and a half years of serum sickness/side effects.....but I have contacted a new immunologist and following his recommendations the brand has been changed ( seems the old one was notorious for issues) and a bag of fluids will be given before the IVIG is started.

I am optimistic and hopeful......I have to be.  I have been told the treatments are "life sustaining", if I stop them, then I am an open target for infections, colds, flu, pneumonia, a sort of bubble girl.  But the serum sickness/side effects are so bad at times, I cannot function.  I am going into this, expecting the best.  Only time will tell, the next few days, and couple of weeks will be interesting.
Will keep you posted.
Goodnight, Sweet dreams  


  1. I'm hopeful it will all go well for you...

  2. Hope the treatment went well today..fingers are crossed for you!

  3. Prayers and the biggest hug my arms can give.