Wednesday, February 13, 2013

Not What I Wanted to Hear

I had my consultation with the immune doc today.  I heard what I had expected to hear, but not what I wanted to hear.  Treatments still open ended, forward we go.  It is ok, I know that they are helping and as long as I can feel progress, I can hang in there. They are after all, life sustaining elixirs.

One of the things about those big green chairs.......they are they best patience teachers in the world.
All I can tell myself, I am where I am suppose to be......and yes, this too shall pass.
To be honest, it is discouraging.....I had hoped, I had wanted, but I knew deep down inside all was not well, not as it should be. I heard the Stone's song coming home from work yesterday, "you can't always get what you want, but you just might, you just might get what you need."

It seems as though my membership in the green chair club will continue, the laughter and tears will too.......not why me, but why not.
I have thought of some of my chair buddies, one has been sitting in those chairs three years, another year has been a hard pill to swallow, but moving into this second year has been a reality check and a major soul search.  I remind myself, it could be much worse.

Yes, Jordan came over tonight, and it was just what I needed, we baked four dozen cookies.
Photos tomorrow night.
Goodnight, Sweet dreams


  1. I hope there will be better news soon and that meantime there will be many, many beautiful joys every day to strengthen you. And baking cookies has got to be right up at the top of those good things!

  2. I'm really sorry you are going through this, Jilda. you don't deserve t.

  3. Sending you lots of hugs, love and peace.