Friday, December 28, 2012

Steven Johnson Syndrome

Here is our great-niece Daisy, who was at our house last week baking Christmas cookies.  I am showing you all her photo because tonight she is in Children's Hospital in Birmingham, Al. and we are lucky and blessed that she is with us.
About a two weeks ago, Daisy cut her foot, and it was a pretty serious cut, so her parents took her to Childrens' for was all pretty routine, and because she is five, the doc did a routine scrip for antibiotics, because we all know most five year olds do not want to wear shoes.

Last night, her parents James and Andrea rushed Daisy to the ER, she was crying with a burning sensation in her nose and throat, her skin was quickly becoming covered in red splotches, she had a temperature.
The young doctor in the ER pulled up her records on their computer, saw that she had been treated with Bactrim ( a sulfur drug) and quickly diagnosed her with Steven Johnson Syndrome,  he saved her life.  I am posting all of this tonight, to hopefully prevent or save another child's or adult's life, vision,
lungs, liver or kidneys.  There are several drugs that can cause this life threatening reaction, and some doctors also believe there might be some genetics involved.  You can Google Steven Johnson Syndrome to see how horrific it can be.

Our Daisy is going to be ok, thanks to the quick action of her parents and her ER doctor, the sooner treatment is started, the better your chances of survival and fewer side effects, such as blindness.
We are deeply grateful tonight, that our Daisy will be baking cookies at our house again soon.
Say a prayer for her speedy recovery, and blessings for her parents.....and oh yes, give all those you love, a great big can change in the blink of an eye.

1 comment:

  1. Oh wow Jilda, you surly have been through the roller coaster this past couple of weeks.
    I'm so glad that your great niece was diagnosed in time. I'll keep her in my prayers.

    I hope that she makes a full recovery and thanks for the heads up on Steven Johnson Syndrome. I had never heard of it.

    Blessings to you.