I saw my pulmonary doc today and I am proud to say I got a good report. Yes, I still have my disease, but right now all is good. It has been just over a year since I chose to stop IVIG treatments.
There were some in the medical community who thought I had made a very bad mistake, but I never took my decision lightly. I did research, and I knew in my heart the choice I made was good for me.
The wonderful thing about my pulmonary doctor, he, along with Rick told me he would support my decision. Today he looked at me and smiled and said, " I think we made good choices." I take a lot of antibiotics and will be on them the rest of my life. But that is ok, I eat yogurt every day, fermented foods and take probiotics. For me, any side effects from the antibiotics are minimal compared to dealing with aseptic meningitis for days on end that resulted from treatments.
After reading the book that I reviewed last night I feel even better about my health path that I have chosen. The tests today didn't lie. Illness can be frightening, dealing with health care and medical professionals can make you feel as if you are on a planet other than earth, but do your homework.
Educate yourself, ask questions, seek more than one opinion, listen to your heart and always have someone with you when doctors are talking to you about the disease and treatment. To be honest, my numbers have dropped more than half since stopping treatments, but I feel better than I have in years.
I have reached the conclusion that I can't worry about the numbers, but what I can do is live my life.
I can do the things that bring me joy, I can live each day in the present. I can eat healthy, exercise, spend time in the fresh air, be with friends and love myself and those around me. I have said it many times, quality is much more important to me than quantity.
Tonight I am grateful. It has been a good day.